The last few years has been an amazing journey that has seen me realise so many of my dreams and as time ticks past, I am getting to realise even bigger ones and I keep dreaming more wild and expansive dreams.
With our trip to Aconcagua drawing closer by the day, I along with two of my team members will be spreading awareness and raising funds for those living with Cystic Fibrosis (CF).
“I can’t be a scientist finding a cure, so this is what I have to do ~ raise money to fund the science.”
As those of you who have been following my blog for a while already, know that my inspiration behind my mountain climbs and behind my chosen Charity supporting Cystic Fibrosis is my best friend, Emma Walker, who sadly passed away at the age of 22. It was Emma that inspired me and who through her own life, showed me how to live and although I miss her every single day, so often wishing I could share things with her, Facebook her or just pick up the phone and give her a call, I now share things with her through time and space and it is in her memory that I do my utmost to live my life to the fullest, reaching far and wide to achieve my dreams and constantly pushing myself to new limits. Her friendship was such a blessing in my life and the courage and determination she lived her life with while she walked this earth continues to inspire me to live my best life. Now, even thought I am thoroughly enjoying life, I do look forward to the day we can sit up there in heaven together, on a big white fluffy cloud catching up all the adventures we’ve had since we last saw each other!
To give you a little bit of back ground on Cystic Fibrosis (CF), please keep reading. Cystic Fibrosis is a genetic disease and although for some it may be symptomless, when two people carrying this gene have a child; the child has a 25% chance of becoming a carrier of this disease. Many causes of this disease are a shut-down in lungs and / or digestive organs eventually leading to the need for a life-saving transplant or sadly, eventually death at young age.
There are several Cystic Fibrosis organizations that provide awareness towards this disease in hope of raising money for research and to provide community facilities to attend to the needs of children and young adults living with cystic fibrosis.
To diagnose CF, a test can be done while the mother is pregnant to see if the baby carries the CF gene or once the baby is born, a simple sweat test can done to find out if cystic fibrosis may be the reason for any of the following things: difficulty in breathing, coughing, skin smelling like salt or failure to gain weight. A sweat test tells the doctor that something isn’t functioning properly inside the body and that the body needs help so that it doesn’t shut down.
Cystic Fibrosis organisations throughout the world are working to rid the world of this genetic disease that has the ability to mutate, making a cure for cystic fibrosis that much harder to research.
Money is a strange thing in this world, normally it is used to buy what we need, want, and desire but in this case it is needed to save lives because it will provide more research and eventually find a cure that will save many lives of people in the prime of their life, at a time when they are just beginning to explore what being alive has to offer.
I hope you find that this is a fight worth fighting for. I hope you can help us push into uncharted territories of science so that the scientists working on a cure can find out how to heal every person living with this disease.
Someone I loved dearly needed a cure. Sadly, for Emma it’s too late but for so many others fighting this disease so courageously there is still a chance. It’s something that needs to be cured and I for one will continue to raise awareness and funds so that one day I can wake up to the news that CF has finally turned into Cure Found.
If you would like to support my team and I in raising funds for this very worthy cause, please visit our fundraising page by clicking here and follow the simple steps to donate. All donations of any size are hugely appreciated and will assist in caring for patients with CF, supporting CF clinics, raising public awareness and facilitating Cystic Fibrosis research in hope that we can one day find a cure.
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Thanks for you taking the time to read this and thank you for considering a donation.